NGO in action
RC Ganjoo
Bone marrow donor Zorawar Singh ( yellow turban ) with recipient
Tejveer Singh ( in Red cap) cutting cake on the Marrow Donor Day.
Everyone is special to
someone. It was theWorld
Marrow Donor Day on
Sept 15, a special day for
Tajveer Singh to meet his
special life saving
superman Zorawar Singh .
When they met the moist eyes were
the only witness to the emotional
feelings of the moment. Zorawar
Singh embraced Tejveer Singh. The
message : there is someone who cares
for someone’s life !
Recipient Tajveer Singh, 19 -yearold
boy has been suffering from
leukaemia for the past three years. He
met his donor on this day with full of
vigour as well as free from signs of
disease. For the parents of Tejveer
Singh , a new member Zorawar Singh
was added to their family.
Three years ago, Tejveer Singh’s
parents didn’t know if they would
find a bone marrow match for their
son . Thanks to Gene Bandhu (NGO) in
Delhi, it got someone to save their
son's life .
Zorawar Singh, a daily wager
carpenter, while watching quietly the
show, said " To save someone’s life is
the best thing one can possibly do
according to will of God. At Guruwara
Raquab Ganj where awareness camp
of NGO was set up , I registered my
name with them as a donor." He was
happy to donate his marrow
Dr. Vimrash Raina, President of
Gene Bandhu
The same story runs for a little four
year old boy Arhaan from Rudrapur,
Uttrakhand. According to his parents
Asim Baig and Rahila Baig, when
Arhaan was a few months old, he was
diagnosed with Thalessemia Major.
Gene Bandhu found a young boy
Jaspreet Singh from a village near
Ludhiana(Village Kaddon, near
Doraha) who had registered himself at
a camp in a Gurudwara. He was a
perfect match for Arhaan. After a lot of persistence by the Gene Bandhu team,
his family agreed and his magic cells
saved Arhaan’s life.
In October 2016 at Sir Ganagaram
hospital Dr Anupam Sachdev carried
out the procedure. Jaspreet Singh, a
young enthusiastic boy, in his twenties
has a respectable job in a bank.
He
feels it was his duty to serve mankind.
A bone marrow transplant is a
medical procedure performed to replace bone marrow that has been
damaged or destroyed by disease,
infection, or chemotherapy. This
procedure involves transplanting
blood stem cells, which travel
to the bone marrow where they
produce new blood cells and promote
growth of new marrow.
Doctors use these transplants to
treat people with certain diseases,
such as Leukemia, blood disorder like
thalassemias, aplastic anaemia, sickle
cell anaemia, multiple myeloma and
certain immune deficiency diseases.
According to Dr Vimrash Raina ,
President , Gene Bandhu " of all
patients diagnosed with blood
disorders, only 25 per cent are
fortunate to find a match with their
siblings. The remaining 75 per cent
are dependent on donors.
Unfortunately , there is no awareness
about this latest medical science".
There are other only two known
stem cell registries in India
DATRI in Chennai and MDRI
( Marrow Donors Registry India ) in
Mumbai, besides Gene Bandhu
in Delhi .
Gene Bandhu has created a
database that consists of the DNA
mapping of about 8000 wishful
donors. Interestingly, donors are not
paid any money for donating marrow.